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I have dysthymia. I've
had it for probably 25 years or so but didn't know it until about 10
years ago. Its effects upon my life and my relationships are only
now beginning to come into my understanding. Dysthymia is an
insidious form of depression. It is long-term and cyclical. It is
classified as "mild to moderate", as if it were no big deal. The
effects on my life have been anything but mild to moderate. It has
robbed me of some of the best years of my life. Here is a quote
from an on-line article about dysthymia that says it all:
"If we think of major depression as a spectacular brain crash,
milder depression can be compared to a form of mind-wearing water
torture. Day in and day out it grinds us down, robbing us of our
will to succeed in life, to interact with others, and to enjoy the
things that others take for granted. The gloom that is generated in
our tortured brains spills outward into the space that surrounds us
and warns away all those who might otherwise be our friends and
associates and loved ones. All too frequently we find ourselves
alone, shunned by the world around us and lacking the strength to
make our presence felt."
I did not realize that
there was anything biologically "wrong" with me. I just thought I
enjoyed misery. It doesn't hit you over the head, it just creeps
into your life and feels like something you SHOULD be able to
control but can't. It feels like it is your personality. It has
made me put up huge walls around me. I am afraid to have a truly
close relationship and I don't even know why.
As far back as I can
remember, I have had episodes of depression, but I didn't know what
depression was as a kid, so I thought it was just the way I was.
The most overwhelming feeling I would experience as a child and
teenager during these times was a desire to not exist. Not suicidal
thoughts, just thoughts of not existing. It would feel like a
darkness creeping into me for no reason. I have always had these
"episodes" although I did not recognize them as such until much
later. I have had a few episodes of major depression on top of
this.
It really started to
worsen after I got married. I would feel like nothing in my life
was right, even if everything was perfect, and to rationalize these
feelings within me, I would blame my marriage. I lost interest in
sex and thought that's all my husband loved me for. I felt like no
one liked ME as a human being. My lack of libido and unexplained
unhappiness eventually drove my husband away, and he left me with a
5-month-old baby with special needs. I don't blame him. A year and
a half later, in 1995, I met my current husband, and only then did I
begin to recognize that the SAME feelings I blamed on my first
husband were resurfacing. That's the first time I was able to
recognize that the problem was ME. I got my diagnosis and went on
Zoloft. It helped.
But I have always hated
feeling like I need a pill to be human, so I have tried going off of
it a few times. Then I start having episodes of EXTREME
irritability, especially with my children. My mood gets to be so
inconsistent that it wears my family down. And I start hating my
marriage again and blowing things way out of proportion. I went off
the Zoloft again in April 2004. Had a rough time but then things
smoothed out. Then in September, BOOM, another major depression.
Crying all the time. Yelling at my children over nothing and
everything. Then incredible guilt. Having NO motivation whatsoever
to even lift a finger. Slogging through the day in a dark haze.
Wanting to not exist again. Wanting NOTHING except to be alone in
my bed under the covers. But wait, I home school my 3 children, so
they are with me all the time. I really wanted to do this, and I
love having my kids with me when the beast is not around. So I went
back on the Zoloft in November 2004. I am still struggling to feel
some happiness. It comes and goes. I feel a pervasive sadness in
the prime of my life, when everything is right and good in my life.
Almost everyone that knows me thinks I am a happy, fun person. I
am, when the beast isn't hovering. Then I have to put on a face and
act my way through life. I feel as if the beast has been floating
around me for a long time and I wish it would either come or go so I
can live my life.
I am planning to start
talk therapy soon. I still feel as if no one truly loves ME as a
person. I think that feeling is part of this disease. I have
no friends that I feel comfortable enough spilling all this to,
because to the average person who hasn't experienced it, it sounds
pathetic and I don't want to sound pathetic. I have told some
people that I struggle with depression, but I never go into much
detail, and they usually don't ask or don't believe it because they
only see the happy me, or the happy mask I wear sometimes. I hate
it. I wish I could trust someone enough to let them really know me
inside and out. And then I wish they would love me anyway, and if
they did, I wish I could believe it.
I believe I will conquer
the beast with the right balance of medication, therapy, support,
and faith in God. The hardest part is letting people other than my
husband and children know the real me so I can have the support I
need, and so I can (maybe, some day?) feel that it is okay to be the
way I am, whatever that is.
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